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New book details the enduring partnership of the former Leeds Rhino and his wife, Lindsey, and their refusal to give up living life to the full despite his MND

It’s quiet and peaceful in the summerhouse where Rob and Lindsey Burrow sit together. Pale Yorkshire sunshine streams in through the windows. We’re out in the garden in Castleford, at the home of Rob’s parents, and there are times when it’s possible to almost forget the deadly impact of motor neurone disease. Rob won eight Grand Finals with Leeds Rhinos as they dominated rugby league from 2004 to 2017 and he played 20 times for Great Britain and England in a celebrated career. But this once cheerfully garrulous man is now a silent prisoner in his body as MND paralyses him and prevents him from talking.

Rob still smiles easily and breaks his silence when he laughs. His vocal cords are in the grip of MND so it is no ordinary laugh. Sometimes, his short bark of mirth makes it sound like he is crying or struggling for breath. But his eyes confirm he is laughing. The pain and the sorrow are hidden then in the shadows beyond the summerhouse.

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